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The Inequities of Celiac Disease

By Aditi Avinash

Introduction
Imagine a world where you live in paranoia, constantly regulating every single thing you eat. A life spent scouring grocery stores for gluten-free aisles or reviewing restaurant menus for safe options. For many, this is not a hypothetical scenario—it’s every day. At least 3 million people in the US alone suffer from celiac disease, meaning they can’t eat any gluten-containing products and undergo horrible symptoms when they do [1]. While awareness of gluten-free diets has grown, the disparity in access, affordability, and safety of gluten-free foods exposes a glaring inequity in the food system—revealing a system that prioritizes convenience and profit over equity and public health.

This reality brings forth pressing ethical questions: what consequences exist when one has restrictions on food in a world driven by diet culture? How do socioeconomic factors shape access to medically necessary diets? And, most importantly, how can society ensure a fairer, safer food system for individuals who rely on these diets to live?

Diet Culture and Celiac Disease
Diet culture often promotes restrictive eating for excessive weight loss. In the current media, many celebrities and magazines endorse a gluten-free diet as being “healthier,” and helping achieve the goal of thinness. For example, celebrity and influencer Kourtney Kardashian recently put her family on a gluten-free diet, saying that it significantly “improved their quality of life” [5]. Watching these stars choose a celiac diet influences the average person to do the same, especially if those celebrities have a desirable body type. Diet culture has turned gluten-free eating into a trend rather than a medical necessity. While this trend has driven market growth and expanded the availability of gluten-free options, it has also trivialized the condition, leading to misconceptions and stigma, and it has increased the price of goods, making them less accessible for those with Celiac diseases. As an article by Georgia State University points out, “With an increase in demand, there is also an increase in price [and] Gluten-free products from mass-market producers have been shown to be 139% more expensive than the same gluten-containing product” [6]. With this knowledge, let's better understand how finances impact a gluten-free diet.

How Socioeconomic Factors Shape Access to Gluten-Free Food
Living with Celiac disease comes with a cost. According to the Celiac Disease Foundation, “gluten-free cereals, pasta, and snacks in the United States can be up to 139% more expensive than their gluten-containing counterparts [2].” Additionally, traditionally gluten-free foods such as quinoa or special types of bread and flour also tend to be expensive as well, so those with Celiac disease have a substantial financial burden to carry. A study published by the National Library of Medicine found that Celiac disease patients tend to have higher out-patient costs than non-Celiac patients, spending upwards of $4000 more per month on medical necessities and proper food [3]. This situation raises many ethical questions. Why should individuals be penalized for a situation they have no control over? This inequity is common with broader medical disparities, disproportionately affecting people of color, who often face the worst outcomes due to higher poverty rates in the United States [4]. Like many other medical expenses there is a clear link between financial stability and access to care, but is this link fair? Most would argue no, but what can be done to create equity? Unlike conditions that can be managed with insurance-covered medications, celiac disease relies on food—an everyday necessity—as the primary form of treatment. Without systemic intervention, this inequity perpetuates a cycle where economic status determines health outcome

How Can We Create an Equitable Life for Those with a Gluten-Free Diet?
Addressing the financial burden of Celiac disease requires systematic change. One potential solution is inspired by Italy’s approach. Those with Celiac disease receive a voucher from the government “to buy specifically produced gluten-free foods, up to 140 euros per month.” Additionally, the government has created programs to educate hospitals and restaurants to help them create and maintain a gluten-free menu. The UK does something very similar, where “over 90% of British celiac patients receive gluten-free food as part of their prescription for the gluten-free diet” [8]. The United States could employ a similar strategy to alleviate financial pains. "By addressing these inequities through policy, we not only improve the lives of those with Celiac disease but also set a precedent for addressing all dietary inequities on a broader scale. In doing so, the United States can move closer to a food system that values health and inclusivity.

Review Editor: Gwendolyn House

[1] Servick, Kelly. “What’s Really behind ‘gluten Sensitivity’?” Science, 23 May 2018, www.science.org/content/article/what-s-really-behind-gluten-sensitivity.
[2] “A New Study Sheds Light on the Economic Burden of Celiac Disease beyond the Gluten-Free Diet.” Celiac Disease Foundation, 1 July 2024, celiac.org/2024/07/01/a-new-study-sheds-light-on-the-economic-burden-of-celiac-disease-beyond-the-gluten-free-diet/.
[3] Long, K. H., Rubio-Tapia, A., Wagie, A. E., Melton, L. J., 3rd, Lahr, B. D., Van Dyke, C. T., & Murray, J. A. (2010). The economics of coeliac disease: a population-based study. Alimentary pharmacology & therapeutics, 32(2), 261–269. https://doi.org/10.1111/j.1365-2036.2010.04327.x
[4] Creamer, John. “Inequalities Persist despite Decline in Poverty for All Major Race and Hispanic Origin Groups.” Census.Gov, 15 Apr. 2024, www.census.gov/library/stories/2020/09/poverty-rates-for-blacks-and-hispanics-reached-historic-lows-in-2019.html.
[5] Mazziotta, Julie. “Kourtney Kardashian Explains Why She and Her Kids Went Gluten- and Dairy-Free.” People.Com, PEOPLE, 8 Dec. 2020, people.com/food/kourtney-kardashian-gluten-and-dairy-free/.
[6] Cuneio, Casie. “Diagnosis or Diet Culture?” Byrdine F. Lewis College of Nursing and Health Professions, 29 June 2020, lewis.gsu.edu/2020/06/29/diagnosis-or-diet-culture/.
[7] “Policies around the World.” Celiac Disease Foundation, celiac.org/gluten-free-living/global-associations-and-policies/policies-around-the-world/#:~:text=Italy,to%20140%20euros%20per%20month. Accessed 19 Nov. 2024.

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